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My life with ALS

Post a new topicby livingwith on Mon Sep 29, 2008 10:02 am

I have never done this before,talked online about my ALS I was diagnosed 3 years ago I can still use my hands to some degree. My husband quit his job to stay home and take care of me.I can still swallow some ,but am thinking strongly of getting the Peg,i t just seems like the last straw,all the money they have taken in on the Jerry Lewis telthon you would think,oh well not that many have it so they are not that interested.
I have already been scammed 2 times(my own fault).I took 6 mos of high d...Read the full article
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livingwith
 
Posts: 8060 | Joined: Thu Aug 09, 2007 2:36 pm

Re: My life with ALS

Post a new topicby denisestrader on Sat Oct 25, 2008 7:42 am

Thanks for sharing. You are a remarkable person and so is your husband. I have watched 5 of my family members deal with this disease and it is brutal. Nevertheless,there is a lot of positive things happening with this disease currently such as the Registry Act and the US military granting benefits, progress in research and more. I highly suggest the peg tube as it enhances quality of life, enables weight stability and decreases choking hazards etc. We had a great experience with it. Hang in there and many blessings to you and yours!
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denisestrader
 
Posts: 5 | Joined: Fri Oct 24, 2008 7:58 am

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