Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Very Confused

Post a new topicby vinci on Fri Mar 21, 2008 8:08 pm

My neurologist told me I had ALS in Nov.07! I have tongue fasiculations, fasiculations in my right arm and leg. My right arm and leg are getting weak, and I am having trouble holding and gripping objects! My limbs jerk, and I am on a feeding tube because I basically am now unable to swallow a lot of foods! Alot of what I eat has to be pureed! On Feb.8, My General Practitioner put me on 2 liters of oxygen because my oxygen level has dropped into the 70's! I have an appointment with a Pulmonologist the end of April! I did go see a specialist at Cleveland Clinic, and he took blood tests, and a cervical MRI! He called me and told me that all I have is Benign Fasiculations! The rest is all in my head!
I went back to my Neurologist 2 weeks ago, and he said "So you dont have ALS! I said OK! GREAT! Then what is wrong with me? I do not believe this is just benign fasiculations! He looked at me and said, "Well, quite frankly, I dont know what is wrong with you! I said OK, what are we going to do to find out what is causing all this to happen to my body? He looked at me and said, "I told you! I dont know what is wrong with you!", and he picked up my records and walked out of the office.

I am very confused! I cannot find anyone to help find out what is wrong! Could this be ALS? I am on medicaid and cannot go to anymore doctors! What should I do?

Vinci
Facebook Twitter
vinci
 
Posts: 3 | Joined: Sat Jan 26, 2008 8:14 pm

The Condition links below will take you to our patient education articles and not to a specific forum topic. Select a topic to learn more.

CONDITIONS
ADHD
ALS
Alzheimer's Disease
Asperger's Syndrome
Autism
Autism in Adults
Back Pain
Bell's Palsy
Brain Cancer
Carpal Tunnel
Cephalic Disorders
Cerebral Palsy
Charcot-Marie-Tooth Disease
Chronic Fatigue Syndrome
Chronic Pain
Coma
Creutzfeldt-Jakob Disease (CJD)
Degenerative Disc Disease
Dementia
Dizziness
Dystonia
Encephalitis
Epilepsy
Essential Tremor
Fibromyalgia
Guillain-Barre Syndrome
Headache
Hemifacial Spasm
Huntington's Disease
Hydrocephalus
Infectious Diseases
Lou Gehrig's Disease
Lyme Disease
Memory Problems
Meningitis
Migraine
Movement Disorders
Multiple Sclerosis
Multisystem Atrophy
Myasthenia Gravis
Myopathies
Nervous System Tumors
Neurofibromatosis
Neuropathy
Normal Pressure Hydrocephalus (NPH)
Parkinson's Disease
Periodic Limb Movement Disorder
Restless Legs Syndrome
RSD
Pinched Nerve
Seizures
Sleep Disorders
Spinal Cord Injury
Stroke
Tourette's Syndrome
Traumatic Brain Injury
Trigeminal Neuralgia
Vertigo
Whiplash
DIAGNOSTIC TESTS
CT Scan
MRI Scan
Neurodiagnostic Tests
Neurological Exam
TREATMENT OPTIONS
Botulinum Toxin Therapy (BOTOX®)
Epidural Injection
Trigger Point Injection
Vagus Nerve Stimulation
HEALTH & WELLNESS
Meditation
Nutrition
Obesity/Overweight
Smoking
Stress
RESOURCES
Clinical Trials
Glossary
Health Toolbar
Links/Hotlines
MDLocator
What Is a Neurologist?
FOR DOCTORS ONLY
Website Services
Get Listed in MDLocator
CME
ABOUT US
Healthcommunities
Link to Us
Testimonials