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Re: 10 years and still have it

Post a new topicby islandgirl on Fri May 15, 2009 12:43 am

I can totally empathize with you about the doctor situation, it was so frustrating, I felt like they had zero sympathy or understanding as to how upsetting this condition really is. My doctor said to me "I just sent a 2 year old to Children's Hospital with acute leukemia, so let's put into perspective how serious your situation really is. It's not." I was floored. I get that it's not terminal and I will recover but the lack of information is so frustrating, and in the beginning it's such a frightening prospect not knowing how long it will last, a little understanding would have gone a long way.
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islandgirl
 
Posts: 6 | Joined: Sun Apr 12, 2009 10:58 pm

Re: 10 years and still have it

Post a new topicby ekramer on Sat May 16, 2009 3:22 pm

Weird facts to share: 10 years later and I can lift my brow a little and still tear up only on my bad side when eating spicy food. Right before parts of my face come back to life, I feel a tingling back behind my ear. I feeling it "thawing" and then I notice more movement. Hang in there fellow sufferers! I may not have the best smile on the world but there are worse things in life.
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ekramer
 
Posts: 6 | Joined: Thu Apr 23, 2009 8:33 pm

Re: 10 years and still have it

Post a new topicby malloryleigh on Mon Jun 22, 2009 1:28 pm

i was told about the accupuncture thing... how does it work and does it actually help? i have had bells paulsy for 4 years now and im really getting sick of the stiffness on my right side and desperate for something to actually help a little.
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malloryleigh
 
Posts: 1 | Joined: Sun Jun 21, 2009 5:30 pm

Re: 10 years and still have it

Post a new topicby sleeza7 on Thu Nov 12, 2009 1:40 pm

malloryleigh, i've had bell's for 1.5 years now. after 6 months i tried accupuncture and muscle stimulation because i was told by someone who had bell's that muscle stimulation worked. Most chiropractors are certified accupuncturists and you'd have to ask them about the muscle stimulus, but it did not work for me, in fact, after i began both i started to suffer from severe synkinesis which i think is getting worse. However, it's worth shot.
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sleeza7
 
Posts: 1 | Joined: Thu Nov 12, 2009 1:22 pm
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