Cephalic Disorders

[livingwith]

I am mother to a beautiful, now 8 year old, daughter who was born with Hydranencephaly. Chrissy was diagnosed with hydran at birth. We adopted her at 7 days of age. We were told she might only live days or weeks. She has proven every doctor wrong on many counts. She has a VP Shunt, does suffer with seizures (controlled by Ketogenic Diet and medications), and has Cortical Visual Impairment. She is in a wheelchair and is non-verbal. But she is very healthy and a happy little girl. She has had no h...Read the full article