Cerebral Palsy

[scaruso78]

My daughter has a preliminary diagnosis of cp. She is a preemie that is now 9 months old. She is in physical, occupational and speech therapy. She moves all limbs but occasionally gets stiff legs. She has just started doing something strange and I don't know if its a mild seizure. She all of a sudden will turn her head to the left, pucker up her lips (like if she had something sour) and get stiff.this only lasts like 2 seconds but she will do it three or more times in a row. Is this like a seizure of some sort or muscle spasm???? She sees her pedi in a few days but doesn't see her neuro until jan. 22. Should I call the neuro sooner??? PLEASE HELP!!!!

Britlyn's Mom

[Kashefh]

To the brave mother,

I am a brother of a sister who have CP. Her right hand and ankle are effected. Though, her brain is alright.... she even completed College.

I am her younger brother.... searching the net for a possible cure. Everywhere I go, they say that there is no cure. Do you also believe that there cant be any cure? Why does this have to be like this?

In this forum....mosts posts I see have no replies. I really dont know where to knock really. I hope I dont see her always in this condition....and they age quicker....they get weaker....and I presume they die quicker aswell.

I dont know... will I ever be able to help her. Are you also searching for possibilities? If so, will you give me some clues?...I am also looking for possibilities.

I wish your daughter well....never wait to call the doctor.... call them at any doubt.

[jazzi]

hi i hae c-p my self and i stiffin up when i was a kid my dad would use lotion and massage my legs feet and arms and hands if you choose to do this please do not use baby oil and not on he hands babies love to suck on hands i am now 52 and my husband still massages the feeling your sweet child is a wierd feeling like her nerves wants to jump out of the skin and her brain and body wants to do thing like every one else does but the muscles are no ready yet give it time i was almost five when i learned to walk the wheel chair was not an option for me i could not see my self sitting when all the other kids were walking and running so my dad held me by me shirt in back and pushed me along granted i walked on my toes untill i had ankle surgery in my 40's no i walk on my heels
if you have any more ? you can emil me
hang in there
jazzi