Cerebral Palsy

[onewishonedream]

Our beautiful baby boy was born on 7-15-08 and everything seemed to have gone ok until our second ped visit. While pregnant with my son I was hospitalized for 7 days ( they thought I had kidney stones) but in the long run I guess it was the baby. I had to have a nepfrosty (sp) bag put into my back. Well still having some pain with it and no longer being in the hospital,it ended up becoming infected and I had to have it switched out. Well going threw all that I had to have Rocephin Antibiotic shots put into each buttocks once a day for 14 days. I asked to speak to a high risk doctor. He told me he had never seen this done to a preganant women before and ordered me to take out the bag before it got infected again, I did. Three weeks later my baby boy was here and appeared to be healthly. Then he was diagnosed with tortocollis of his right side. He started physical therapy at 2 months and has been going since.He has been in and out of the doctors office and hospital with illnesses like flu,breathing problems and phenomia. We did finally get to a Neurologist and she diagnosed him with the spastic kind of cp (tight or stiff muscels). When I did some reading on the internet it said when you have this type of cp sometimes you may have a favor to one side, you may be more weak on one side then the other,your head can tilt. I was wondering if anyone else with maybe older children have gone threw this because I am beginning to wonder if there is really torticollis anymore.My son is 6 months old now and can not prop sit, can not roll over ( and barely side to side), he does not hold things well in his right hand and he always fists and turns his fists in like a outward direction. His therapist gave him lil splits like things to help him open his hands more but he would rather chew them then anything. My family says contact a lawyer that there are so many things wrong with him. I would like advice, information or really any help I can get at this point. I live in MI and I just want to see my son be able to be a baby for once and not have 7 doctors in his face weekly. Any help I would love to hear. I wish the best to all of you and all of your cases. I believe "special needs" children are truely Special and the more educated I am the more I can help him and others. Thank you!

[jazzi]

hang in there your correct one side will be weaker ballance will be off and the beauty of being born with a dissabilty we adapt we have no idea we are differant untill people tell us we are
so let your son try and do thing on his own of corse it will be messy and he will cry but you just say keep trying even though you want to cry with him and you will but rember this every thing is hard untill becomes easy my eat grand father let me jump on his bed it built up my leg muscles i was given small balls to throw and thay were thown by others like a game not therphy
hugs jazzi