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17yrs old...please help, hoping DR's will see this!

Post a new topicby pleasehelp17 on Tue Sep 25, 2007 11:53 am

ive been having odd symptoms almost as long as i can remember im a 17 yr old female...
i know im only 17 but at this point im lookig into anything and am not willing to rule anything out yet.
i only thought of CP beacause i was deprived of oxygen for almost my whole life due to an unfound whole in my heart and being born breach...
ive had openheart surgery for a 1.7 inch hole in my heart about 6months ago, but my cardiologyst insists my problems are not related aside from the occational v-tach...

my symptoms vary from abdominal to neorological, and are as follows:
..dizziness
..dissoriantation
..numbnesin pointer/thump/right side of left arm accompanied my nerve or muscle(not sure wich)spasms btween thumb/pointer
..syncope w/body tingling upon waking lasting anywhere from 5 seconds to 35 seconds even without excertion
..paleness
..palputations
..floaters in aeys
..trouble finding the right words/speaking and shortterm memory difficulties
..migrains on left side of head and base of head above neck to the point were if i move hear noise or talk im in severe pain
..CONSTANT hand tremors/shaking wich ive had ever since i can remember
..odd sensation on back of head upon touching it(occurs wth the migrains)
..left side electric abdominal pain lasting from a few minutes to a few days
..facial twitching in right eye and mouth upon smiling talking etc...
..innability to balance with eyes closed
..cold sensativity
..jerky movements during all activities wich only recently started
..bladder has not grown since 6 months old and kidneys are underdeveloped...

if u have any answers related to CP OR anything else please wright
pleasehelp17
 
Posts: 8 | Joined: Mon Sep 24, 2007 10:48 am

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Re: 17yrs old...please help, hoping DR's will see this!

Post a new topicby ashaymudholkar on Tue Nov 06, 2007 4:43 am

Hey dear ,
The symptoms you stated looks unrelated to cerebral palsy . but looking at kind of problems you are facing, i advice you to get good medical advice .Having hole in heart does not necessarily mean that you are starved of oxygen so that it can lead to hypoxia (reduced oxygen supply) . As you are already 17 years old and there is no spasticity or athetoid movements it is unlikely to be CP.
ashaymudholkar
 
Posts: 1 | Joined: Tue Nov 06, 2007 4:15 am

Re: 17yrs old...please help, hoping DR's will see this!

Post a new topicby Swampfox on Fri Feb 22, 2008 3:47 pm

First, what State are you in? Have you gone to reputable hospitals who specialize in neurology and had a neurological workup done? Let the professionals tell you what is going on. It cannot be done via a forum like this.

Once you get your diagnosis, then go look for help in that arena... start with support groups from the hospital, online, National Associations like Easter Seals, and check if you qualify for the Medwaiver program, available in most States. You have to be registered before age 18 so that you will have the support. Can't register unless you have a qualified diagnosis.

If you do have the beginning stages of CP then you need to be following some good practices like stretching, exercising, massage, Physical Therapy, etc. You need to be connected with your nearest Center for Independent Living so that you have an Advocate to help you when you need it.

Keep your inner strength going and keep moving!

Swampy
Swampfox
 
Posts: 21 | Joined: Fri Feb 22, 2008 3:13 pm

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Re: 17yrs old...please help, hoping DR's will see this!

Post a new topicby mahalia on Fri Mar 21, 2008 12:21 am

hey chicky,wow you must be a strong person.but i advise you seek medical opinion.bt your tremers sound alot like a type of sezure.
mahalia
 
Posts: 3 | Joined: Fri Mar 21, 2008 12:01 am

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