Charcot Marie Tooth Disease

[livingwith]

Since I was a child, I knew that I was different. I used to fall a lot, I couldn’t run as fast as my classmates, I had no sense of balance and I hated the annual physical fitness exams at school. Living with this disease has always been embarrising to me. Aside from always falling down in public, I can’t wear certain shoes, and hate to show my legs or feet.
I have scars on my knees, curled toes, calluses, stork legs and unbelievable amounts of shooting pain from my feet to my kn...Read the full article

[Michael Price]

Lisa,
I'm a 30 yr old male with CMT and, like you, my disease has gotten worse over the years. I've had many surgeries to correct the problems and all of the surgeries have left me in better shape than when I started. Although they helped, they did not live up to my hopes until I found the best doctor for the case. He corrected more in one surgery on each foot than my previous doctor did in four attempts. My suggeston to you is to do some background research on your doctors previous work in cases such as ours. If he does not have any previous history in these cases, then you might need to find a doctor that has experience. Unfortunately, there is no cure for CMT, but there is always hope.