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Home » Charcot Marie Tooth Disease Living With: Myentirelifeandfamily

My entire life and family

Post a new topicby livingwith on Tue Sep 02, 2008 4:46 pm

I was diagnosed with CMT at the age of 10. My Mom and Aunt always had a strange walking gait. They said noone ever gave them a “name”. I had my first surgery when I was 11 to extend my tendons in my right foot. I never could run well. But I was always active!
At the age of 22 I had another surgery and then many more. I never wanted to be slowed down and have fought it all my life. I have 3 children and I manage group homes for people with disabilities. My brother had this...Read the full article
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livingwith
 
Posts: 8595 | Joined: Thu Aug 09, 2007 2:36 pm

Re: My entire life and family

Post a new topicby mollydavid on Thu Oct 16, 2008 3:26 pm

i also have cmt but i was never really diagnosed with it i just always knew i had it. My mother and 2 brothers also have it.
I had 1 tendon release when was 18 months, it worked for a while but then it just stopped working and i started walking on my toes again. im 14 now and im having another opperation in about a months time. its jusut nice to no that other people have cmt too and your not the only one.
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Posts: 1 | Joined: Thu Oct 16, 2008 3:15 pm

Re: My entire life and family

Post a new topicby Kimmergrand on Sat Nov 01, 2008 1:35 pm

Check out my posted story for November 2008 and never, never give up baby!!!
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Posts: 3 | Joined: Fri Oct 31, 2008 11:52 pm

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