Charcot Marie Tooth Disease

[livingwith]

hi im sue i have cmt foud out at 40 i have passed it on to my daughter and grandson age6 hes showing signs already ive had 7 operations on my ankels ive been told by adoctor that i have cmt in my voicebox: handsalso my digestive system,im on awalker for mobility my husband is my full time carer i have good and bad.
does any oneelse have cmt in same parts of body like me .my hands are going strange ,my writing is very poor now,my family has been tested,8 member have cmt whilst i some times find i...Read the full article

[dvk]

Hi,

My name is Delia I have been diagnosed with cmt disease about 4 weeks ago. Just a little advice go and do a search on diet for people with cmt. The diet is very much the same as people with MS. I found by cutting out white flour products the pain is not so bad. I am on neurontin 300mg 3 times a day and that seems to ease the pain sometimes. I have good days and bad ones. But I am sure that you know what I am talking about!!!! I hope this little bit of info helps you. I have 3 kids aged 18,16 and almost 6 and the eldest daughter and the 6 year old is showing some signs of CMT. I pray that it won't be that.

Regards
Delia