[Guest]

I need more information badly. Any links or emailed info will help.

[Guest]

hello,
i don't know much about this disease, but you can do a search at
www.google.com and type in the name. It should list many sites that discuss this syndrome. There will be chat rooms and discussion group sites for you too.

Also, I have asked [moderator note: website address has been removed] to look up information on diseases they didn't already have articles on, if they don't have anything about this syndrome ask!

good luck to you.
karenmac1


I need more information badly. Any links or emailed info will help...

[Guest]

hello,
did a little more research for you. Didn't know if you read my first response and you found all you needed.

found this site called
www.ninds.nih.gov
it gives tons of info on disorders A-Z

i have copied some of the info for you about this disease. This is the syndrome you were asking about?
goodluck,
karenmac1

What is Chiari Malformation?
Chiari malformation (also called Arnold-Chiari malformation) is a condition in which the cerebellum portion of the brain protrudes down into the spinal canal. Chiari malformation may be congenital, associated with other anomalies including myelomeningocele, syringomyelia, and spina bifida. Hydrocephalus (increased intracranial pressure) may also occur. Symptoms most often begin during infancy, although they may be delayed until adolescence or adulthood. Symptoms usually include vomiting, muscle weakness in the head and face, difficulty swallowing, and varying degrees of mental impairment. Paralysis of the arms and legs may also occur. As they grow older, adults and adolescents with Chiari malformation who previously were asymptomatic may show signs of progressive brain impairment, such as involuntary, rapid, downward eye movements. Other symptoms may include dizziness, headache, double vision, deafness, an impaired ability to coordinate movement, and episodes of acute pain in and around the eyes.
Is there any treatment?
Children with Chiari malformation may require surgery to repair an existing myelomeningocele. Hydrocephalus may be treated with surgical implantation of a shunt to relieve increased pressure on the brain. Some adults with Chiari malformation may benefit from surgery in which the opening in the back of the skull is enlarged to relieve intracranial pressure.

What is the prognosis?
Most patients who have surgery experience a reduction in their symptoms. Some patients may experience prolonged periods of relative stability. Infants with very severe malformations may have life-threatening complications.

What research is being done?
Basic research supported by the NINDS includes studies to understand how the brain and nervous system normally develop and function and how they are affected by disease and trauma. Studies of the developing brain and nervous system have opened promising new avenues of research and contribute to a greater understanding of congenital birth defects, including Chiari malformation.


[quote] I need more information badly. Any links or emailed info will help... [/quote]