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Rare form of Dementia

Post a new topicby Guest on Sat Jul 14, 2001 10:08 pm

My father has just been diagnosed by a neurologist which happens to be out of town at present and I am pressed to find the disease. My mother wrote the name of the disease on a piece of paper and wrote "phonetically" the name based on what she heard the doctor say twice. What she ended up hearing was a word that sounded like...and again this is spelled phonetically...

yahquayitsell

I can find nothing on the net that would even resemble this. The closest I can come to is Creutzfeldt-Jakob, provided the doctor may have turned the names around. If so then Jakob-Creutzfeldt would be real close.

The doctor said his EEG was abnormal two weeks ago. He saw Daddy in December 2000 and he had what he thought were the beginnings of Alzheimer's. Now he is totally clueless. I was with him at his last Dr. apptment and he couldn't put two words together much less make a sentence. The Dr attempted an MRI but Daddy shook too much to be successful. They took blood and the new diagnosis was the result of the blood test results, apparently.

If there is another disease that would fit the phonetic spelling, then I would like to know what it would be because I can't find anything.

Thanks

David Garrett
Dumas, TX
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Re: Rare form of Dementia

Post a new topicby Guest on Mon Jul 16, 2001 5:49 pm

It sounds s if Jacob- Creutzfeld (CJD)is the closest sounding name. As you may know, it is associated with particular EEG abnormalities in most cases. There are some forms of dementia that are associated with specific findings on blood testing, and in some laboratories, CJD may be evaluated. It is one of the types of dementia that tends to progress very rapidly with many patients deteriorating clinically over a very short period of time, as opposed to Alzheimers type dementia, which is often progressive over years. You might consider having been seen by a behavioral neurologsit for a second opinion if the diagnosis is in question. Good luck, and I am sorry that he has done so poorly.
[quote] My father has just been diagnosed by a neurologist which happens to be out of town at present and I am pressed to find the disease. My mother wrote the name of the disease on a piece of paper and wrote "phonetically" the name based on what she heard the doctor say twice... [/quote]
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