Epilepsy

[livingwith]

Just a few days ago I was hospitalized with a siezure. When I woke nearly 6 hours after the event I was in an ICU at the hospital with my brother sitting in a chair next to me. He then explained to me the whole story. I blacked out and collapsed and when everyone though it was over I started to become violent. Running around aimlessly in and out doors. I broke a table in our home and when my wife tried to calm me down I pushed her and pulled her by her hair. Neigbors came to help my wife b...Read the full article

[jmccleary]

I feel bad for you reading your story.. I had a seizure this past Saturday. Was nothing like the one you unfortunatlly experienced. I woke up in my bed with emergency personnel and my family standing around my bed. It has been 4 years since my last seizure.. I have restarted my meds, which I am not a happy camper to be back on because they make me a totally different person... zombie like...What really is not cool is that I had bought my first new car only 2 weeks ago... now since i had a seizure laws around here say I cant drive for 6 months... that does not please me at all... now I am making payments all by myself still on a car i cant touch.. that is a teaser.. not fair but i guess it is for my own safety.
I had never heard of such a kind of seizure that you had. I am sorry to hear that something so difficult to understand..... when you dont even know you are you doing it ... is happening to you.. if that makes any sence?..To come to, and not know what happened.. I understand. You are in my thoughts and good luck with everything. Your family will come around and realize our actions are involuntary when we face these .. unfourtnate events. .... Jamie M. 29 PA

[ABsupermom]

I am so sorry for your situation. I have never experienced anything like that before. It is too bad that you do not have the support of your wife. I was diagnosed with a seizure disorder almost 20 yrs ago and have had my ups and downs. There are so many different types of seizures it can be difficult to find the right combo of meds. Anything that your friends and family can help you remember about how you felt before and after can be a clue as to what type of seizures you have exactly. Things like being anxious,twitches,headaches,dizziness, seeing stars,bad mood, angry feelings,odd tastes or smells and repetitive motions(chewing,blinking,repeating words) you did before the major episode hours or even days before is very important info that you should tell your Dr about. Sometimes having improper hydration or nutrition and especially sleep deprivation can be a trigger. It takes awhile to figure out your triggers but you can do it. Your family should go with you to appointments to get questions answered that they may have. There are also a type of neurologist out there called epileptoligists. They only deal with epilepsy. I would also recommend contacting your local epilepsy foundation,they are a wealth of resources and you will hear all types of stories of seizures of disorientation that may help feel so not alone.I heard about a lady who drove into a lake because she thought it was her garage. The epilepsy foundation is also your ONLY non reporting agency. Meaning your Dr or hospital etc can contact the DMV and other places regarding your condition that you may want to keep private. They also have a website you can visit. www.epilepsyfoundation.org

[Roseann]

I too have no memory of what happens when I have a seizure, I have to rely on my husband to tell me. I have horrible aggression most times I can control it I assume this is because of the medication, I always take it when I'm suppose too. But there are times I just want to rip peoples heads off! Or my own. Especially because the seizures just won't stop, I now have some warning signs I can feel when a seizure is gonna happen, such as eye twitching, clenching my fists and an unusual smell, I find that if I sit in a quiet place where I won't get hurt by myself I can protect those around me from my abusive manner. My husband says he understands but I really don't think so cuz he can trigger an episode at times? Epilepsy like alcoholism and drug addiction are very hard diseases to understand unless you live thru them. Give your family time, let them go with you to the neurologist so they can ask questions. Good Luck!

[Lazyland]

You are in a tough situation. I also have violent seizures, or rather seizures with aggression, on occasion. I have broken furniture, said awful things, and more. Not as extreme as what you had, but I know the direction. Tell the people you love that you need them even more now, and make sure your neurologist is a good one. There are many medications, try different ones until one helps.

[vdavis]

My heart is breaking for you. I too have seizures and have been having them on and off for the last 15 years. I'm a 43 year old woman with 4 children I need to be strong for. I recently had a seizure to which I woke up in the ER restrained. It was terrifying. My first memory's were myself screaming and begging for them to let me go. Evidently, when the paramedics came to pick me up I did not want to leave my house and I kept telling them I just wanted to sleep. I was swinging at them trying to hit them and my husband said that I was trying to bite at them! I have no memory of this. Out of all my seizures, this one I feel was the worst experience ever. Not to mention the total despair you feel a week or so later. My husband made a comment that I need to snap out of it. If it was that easy, I would. It's a slow process. I can't help but feel like I'm brain damaged after a seizure. My memory is is not good, I feel like I have anxiety, and I feel like I'm moving in slow motion. Things that I use to do on an everyday basis, is now something I have to force myself to do. Nothing seems easy anymore. Simply walking across my room I feel tired. I know that this is temporary and that I will feel better, but then you always have to worry about having the next one. Know one fully understands unless it happens to them. I try to explain how I feel to people and I feel like I'm not making any sense. Try to stay strong, and reach out for some support. Maybe talking with others that suffer with seizures can help us find some comfort.