[auburnmomof3]

Hello,
I would like some advise from you guys and gals. I have had epilepsy for 28 yrs. I have always worked fulltime and raised 3 kids alone with no help. Last yr I started having seizures again and lost my license and my life fell apart. Divorced my husband. Lost my home. Filed for disability. I am able to work part time. I have my 3 children ages 16, 10 and 8. I recd medicaid for 1 month and because I made too much money they dropped it. I have had insurance all of my life and medicaid 1 month and since last January have been without insurance and now cannot get insurance. I have wrote letters until I am blue in the face. The government tells me I will get medicare this January. That doesnt cover the hundreds of dollars of month of prescriptions or hospital, ambulance and dr bills within the last 10 months of emergency costs that due to no insurance have been ran up. They tell me unfortunately, I am one that has fallen through the cracks. What are we to do about this? We are not asking for any handouts but we are asking for some kind of help since we are not able to work for our insurance and do to the rules and regulations that medicare isnt in effect for a yr. There should be something to cover in between medicaid and medicare. WE all need to write letters for our healthcare. Any advise??

[irishred]

to auburn mom, my name is bevin and i have had seizures since i was four but was never clearly diagnosed til age 21. I have a non specific seizure disorder. you are right there should be insurance to cover you in between medicaid and medicare. I would go to a social security disability lawyer and ask him what you should be able to get for healthcare coverage between the time you were given medicaid and now when you are waiting for (no reason)til medicare can cover you. write to your senator asking him or her to come up with ideas for health insurance plans to cover people that are going through the same thing you are facing. bevin

[gofish]

auburnmom,It seems we never have to look far to find another who needs help more than ourself. Ok, here it goes. Now you may have heard all of this befor so just ignor it if you have.There is a fund w/in the hospitals called the Charles Burton fund. It may or may not be in all hospitals, and it may be used up for this year and will not be there again until January of 2008 but you might want to check with a social worker at a hospital you have a bill at to see if you qualify. Also there is debt forgiveness where they write off 'some' medical indebtedness, or will take a very reduced amount at a very low monthly payment, although, that may not help if there is no income. If you are deemed disabled by Social Security there maybe additioal help, as of yet I'm personally in that process myself and will let any one who wants to know what I learn as I go along. If you are buying your home or are lucky enough to own it you may be able to get a reduction in property taxes if disabled. But whatever you do please do not give up, special people like us cannot give up or cave in. Epilepsy takes so much and never gives back. Post back if you can. David

[auburnmomof3]

Thanks David (gofish)!
I have never heard of teh Charles Burton fund and will check into that. I found out from social security that it is going to be Dec of 2008 before I will receive insurance and that is another yr without any coverage. This is really unfair and I am not through. I will post back and keep you posted in everything I find out. Thanks and keep me posted too!

[gofish]

auburnmomof3 I,m glad you got back so fast. Idon't know what state you are in and I,m not sure we are allowed to share that info but here we have Catholic community services and they may be of some help also, you just never know good luck. David