Epilepsy

[NANI_08]

WELL ON TUESDAY I GOT A SEIZURE ON TUESDAY BUT I USALLY GET SPAMS BEFORE... AND THIS TIME I DIDNT. WELL I FELL AND I HIT MY FACE AND FOREHEAD REALLY BADLY.... ANY POINTER ON WHAT KIND OF MEDICATIONS ARE GOOD? IM TAKING TOPOMAX RIGHT NOW. ITS HELPED ME BUT I THOUGHT I WAS GOING TO STOP GETTING THEM. WELL PLZ PLZ RESPOND!!!

[Denise779805]

Hi, I have had seizures since 1995, I was 18 years old when I got into a car accident and went through the car windshield - head first. Well, now I'm 30 years old and I have had my fair share of medications. The first thing I would like you to know is that everyone responds to medications differently. Everyone has different side effects, and if you take any other medications it could interfer with your seizure medication drastically. I have taken Topamax before and I though it was a great medication, but I had to stop it because I am on Methadone and I found out that it reduces the effect of my methadone. Another good medication with limited side effects, for me, was Tegretol. I was on Tegretol for many years and I had no side effects - but that's me, like I said everyones body and system react to medications differently so you may need try a few medications out before you find the one that works for you. I am very familiar with most seizure medications, my mom is always telling me I should switch my college major and become a pharmacist. Anyways, if you would like to discuss medications contact me at my personal e-mail I would be glad to fill you in on my experiences. There is a couple questions I have for you to help you figure out what medication would work for you. Some medications are much stronger then others, and I don't know how often you have seizures or what strength you are looking for. [moderator note: e-mail address has been removed]

[NANI_08]

WELL IM 17 YEARS OLD I GOT TOLD I HAD EPILESPSY WHEN I WAS 16. WELL IN APRIL I GOT A REALLY BAD SEIZURE IN THE SHOWER THAT I FELL AND BURNED MY FEET WITH 3RD DEGREE BURNS WITH THE HOT WATER. I REALLY HOPE THAT THE SEIZURES GO AWAY BECAUSE MY NEUROLOGIST SAID THAT I'LL HAVE A CHANCE OF GETTING RID OF THEM. IS IT POSSIBLE? IS IT ALSO BAD TO DRINK ENERGY DRINKS LIKE MONSTERS? MY MOM THIMKS ITS BAD. WELL IM GOING TO CHANGE MY MEDICATION TO SEE WHATS STOPS MY SEIZURES BECAUSE I DONT WANT TO BE GETTING THEM LIKE I DO. BUT PLEASE HELP ME OUT WITH POINTERS BECAUSE I FEEL LIKE IM JUST BEGGINING.

[dmom3005]

First I'm the mom of a 16 year old that has had seizures since he was 8 years old. He is still uncontrolled. And he is on 3 different types of medications. Trileptal, zonegran and lamictal
he is maxed out on all three medicines and has the Vagal Nerve Stimulator too.

Anyway its something that in some cases you can stop having seizures. So please work really well to get to the point that you know the medication isn't working. And ask to try another.

Or add to the one your using.

We are getting ready to go in and do what is called a Video EEG. Its his 5th.
Donna

[irishred]

hello my name is bevin and I was diagnosed 8 years ago with a seizure disorder and have been on several kind since the age of four like phenibarbitol, tegretol, at age 21 when diagnosed properly was put on lamictal butt was allergic, now on depakote for the past 6 or 7 years. For your seizure your neurologist might want to try you on either tegretol with topamax or maybe even depakote the medicine I take for seizures w topa , or maybe trileptal a new seizure med I hear about. you need to go back to yourneurologist and tell him what happened and ask him what needs to be done. best of luck I hope these suggestions help. good luck. May the grace of God be with you and may he send his blessings your way.

[NANI_08]

thank i went to see him today and he's switching my medication to lamictal. So im going to be takin topomax and lamictal until i get the right dosage of lamictal then im going to stop taking topomax. But hopefully until then my seizures stop and are controlled better. Thanks again everyone for the advice.

[noobear]

I had a hard time in the beginning just wishing that the seizures would go away. The emotional side of seizures can be overwhelming. Worrying aobut if or when you'll have another can make you focus on nothing else. I can tell you that my life is now great, I feel so much better, and all that worry was not worth it. Good luck with everything and I hope you find what works for you.

[schultz]

HELP!!!! I just got the VNS implant in Aug of 2007 and if I had to do it again I just don't think I would.. It has helped the size of my seizures but my neck is constantly hurting - feeling is like I am always chocked up. I am not at full charge yet. I don't know what to do. Is this feeling norma?

[drpearso]

My daughter is currently on Depakote, Zonigran, and Keppra. She is scheduled to have the VNS surgery soon. She is 18 years old. She has been on almost every medicine known...How long has your son had the VNS?

[Kix]

PLease please, do not drink energy drinks, the herbs in them will affect how your seizure meds work!