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Living with E.T. for 40 years

Post a new topicby livingwith on Wed May 13, 2009 12:21 pm

Hi
I have had the shaky hands for ever I am 54 years old now,I worked hard all my life but a year a go I noticed I could no longer turn the dials on the extruders in our plant I can not use a touch screen anymore,and I can not be around razor blades anymore,threw the years I have been severly cut many times from my shaking,I now shake so bad in my legs, feet, mouth,hands,and my walking is bad I fall down a lot.
When I went to the doctor he said if it was not for tremors running in my family he...Read the full article
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livingwith
 
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Re: Living with E.T. for 40 years

Post a new topicby kybelle42 on Tue Jun 02, 2009 9:24 pm

Hi,
I also have been living with E.T. for at least 40 years. I am about to turn 67. Two years ago it began to affect my voice. It has gotten worse each decade, as my Neurologist said it would. Each decade he has added a new medication. I will tell you what medications I am taking, and the strength. I believe I am taking much higher doses than you. My tremor is under control, but I feel tired all the time. I try to exercise to increase my metabolism. Medications: Propranolol 160 mg (am), Primidone tabs (generic for Mysolene) 250 mg 1-1/2 pm, Gabapenten 300 mg 3 x day, Topamax 50 mg 2 x day. I also have Xanax to take if I feel anxious.

The Topamax is the last medication my doctor added and it has helped my voice. I have trouble if I get real anxious or upset. I have not had trouble walking.

If I could get off all my medication I would do the brain surgery, I think. I know it is frightening to think about, though.

I don't know if this will help.
Kybelle42
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Posts: 1 | Joined: Tue Jun 02, 2009 8:59 pm

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