Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with Fibro

Post a new topicby livingwith on Tue Mar 10, 2009 11:09 am

I was diagnoised with fibro at 15 and I’m now 21. I have a 2 year old son that is diagnosed with cerebral palsy and seizures so my schedule is full with his therapies and doctor appointments. I have a wonderful doctor and I’m also on 7 different prescriptions and none of them help. I also research fibro online, but it seems like no body understands what causes it. It’s also depressing knowing I got to live like this for the rest of my life. I have migraines everyday and my whol...Read the full article
Facebook Twitter
livingwith
 
Posts: 8060 | Joined: Thu Aug 09, 2007 2:36 pm

Re: Living with Fibro

Post a new topicby Chrisser on Tue Mar 10, 2009 3:37 pm

Hi Teresa. Don't give up. You have so very much on your plate right now.
Anyone would be overwhelmed. I, too, have tried many medications. Lyrica
did not work for me. I am on Prozac 40 mgs with 1mg of Ativan at night.
I am waiting to get the Lyrica out of my system. In a couple of weeks,
I will try 10 mgs of Elavil gradually increasing the dosage each week to no more
than 50 mg. if I can tolerate it. They hope that this will help with pain. So fare in my life with fibro,I found that the more drugs I took, the worse I became. I could not see the forest from the trees. I only know that when I got off these various drugs, with the exception of the
current Prozac, I felt better. I am not saying to go off your drugs, that would be stupid.
But, do review them. Ask the Dr. if it is possible that any have "pooped out".

Feeling better, I know, is relative because it is so very rare to feel GOOD.
I would strongly suggest meditation if you can sit still. In a chair, feet on the floor,
hands on thighs. Close your eyes. Don't try to stop all the thoughts from
bubbling up in your brain. Just let it rip. Like all the bubbles in soda fizzing to the top of the glass. And, when it comes to mind, think PEACE, RELAX, and breathe deep. Try it twice a day for 15 minutes you can. If not, just when you can.
Let us know how you feel. We will be waiting. You are not alone. Take each moment , each day, one thing at a time.

do it when you are able.
Facebook Twitter
Chrisser
 
Posts: 1 | Joined: Sun Mar 08, 2009 7:00 pm

Re: Living with Fibro

Post a new topicby ralph pelkey on Tue Mar 10, 2009 4:30 pm

I read your story and i do understand what you are going through and your going to make it i just feel it in my heart. I have had firbo for 13 years and 8 years ago one of my twin boys died it like to have killed me my wife was going through her mid life crisses and had a affiar i was wondering what else DONT EVER ASK THAT.YOU WONT LIKE THE ANSWER BELIVE ME.I came down with cancer well made it through that thank GOD oh ya 10 years ago me and my wife got hit by lighting tha did it. So i had to sit down and think about all thats gone on and why.I feel i got firbo becuase i needed to slow down my job at the time required 90 to 95 hours a WEEK.my son died at 23 but i must tell you he lived a full life belive me but i still miss him so much.the affair my wife had was heartbrakeing but i shut everybody out when my son died and no buddys perfect and she has been there through my cancer.my wife has been there through every thing she been my rock.and i wish every body has a spouse like mine she takes car of me better than an angle could mabey shes the angle GOD sent me and we have a blast together and when im not well she can allways make me laugh and thats how i get through AND I NO THAT GOD LOVES ME AND EHEN I DIE HES GOT A NEW BODY THATS PERFECT. GOD BLESS YOU ARE IN MY PRAYERS please let me no how you are doing. RALPH AND KRISTI PELKEY
Facebook Twitter
ralph pelkey
 
Posts: 50 | Joined: Mon Jan 26, 2009 7:06 pm

The Condition links below will take you to our patient education articles and not to a specific forum topic. Select a topic to learn more.

CONDITIONS
ADHD
ALS
Alzheimer's Disease
Asperger's Syndrome
Autism
Autism in Adults
Back Pain
Bell's Palsy
Brain Cancer
Carpal Tunnel
Cephalic Disorders
Cerebral Palsy
Charcot-Marie-Tooth Disease
Chronic Fatigue Syndrome
Chronic Pain
Coma
Creutzfeldt-Jakob Disease (CJD)
Degenerative Disc Disease
Dementia
Dizziness
Dystonia
Encephalitis
Epilepsy
Essential Tremor
Fibromyalgia
Guillain-Barre Syndrome
Headache
Hemifacial Spasm
Huntington's Disease
Hydrocephalus
Infectious Diseases
Lou Gehrig's Disease
Lyme Disease
Memory Problems
Meningitis
Migraine
Movement Disorders
Multiple Sclerosis
Multisystem Atrophy
Myasthenia Gravis
Myopathies
Nervous System Tumors
Neurofibromatosis
Neuropathy
Normal Pressure Hydrocephalus (NPH)
Parkinson's Disease
Periodic Limb Movement Disorder
Restless Legs Syndrome
RSD
Pinched Nerve
Seizures
Sleep Disorders
Spinal Cord Injury
Stroke
Tourette's Syndrome
Traumatic Brain Injury
Trigeminal Neuralgia
Vertigo
Whiplash
DIAGNOSTIC TESTS
CT Scan
MRI Scan
Neurodiagnostic Tests
Neurological Exam
TREATMENT OPTIONS
Botulinum Toxin Therapy (BOTOX®)
Epidural Injection
Trigger Point Injection
Vagus Nerve Stimulation
HEALTH & WELLNESS
Meditation
Nutrition
Obesity/Overweight
Smoking
Stress
RESOURCES
Clinical Trials
Glossary
Health Toolbar
Links/Hotlines
MDLocator
What Is a Neurologist?
FOR DOCTORS ONLY
Website Services
Get Listed in MDLocator
CME
ABOUT US
Healthcommunities
Link to Us
Testimonials