Fibromyalgia

[livingwith]

After years of being told nothing was wrong with me, I ended up with a doctor that actually read my medical history, which is extensive, And he said he didnt understand why I hadnt be Diagnosed with this years ago, I had had doctors tell me I was to young to have RA
Or anything else, they tested me over and over for lupus and MS and it always came back fine. Now that I know what I have. and that I am not out of my mind. Has helped a little, the meds were working at one time, But not anymore,...Read the full article

[ralph pelkey]

its funny we struggle for so long just looking for an answer we hurt so bad we cry we give up just about everything and the doctors just look at us like were nuts.When a doctor gives us a diag some sick way we find some comfort in it.And its taken years to get where your at now.Now your parents your spouse and your friends think a doctor just told you this to make you feel better or to shut you up .they think ok you might have something wrong with you but it cant be that bad well they JUST DONT NO DO THEY.I have been fighting this nasty disease for 13 years and when the PAIN sets in there is no mersey on you at all.now we are still trying to make people understand but we cant becase when the pain lets up its hard for us to comprehend iam to the point now where its afficting my spelling i will be in the middle of a sentance and forget what i was saying or what we were talking about. I get lost when i am out driving i forget how to get home i have times i cant get words out of my mouth its like you can say every other word but the one your trying to say evary thing affects us from low pressure fronts to rain to snow the cold will put you in bed in a heartbeat and make you feel like you have been mugged and try to get on SSI the act like you dont exsist if you dont have fibromyalgia you do not have any idea what we are going through AT ALL, THIS IS A DEBILLTATING DISEASE I will keep all you in my prayers keep mr in yours and mabey we will get through this GOD BLESS ALL OF YOU RALPH PELKEY [moderator note: e-mail address has been removed]

[beakermom]

I definately know what you mean!My mental confusion has gotten much worse over the last year or so. I was just diagnosed about 2 yrs ago, but looking back, I have probably had this most of my life. I am now always in soooo much pain and I am sooo tired, I just don't know what to do. I am on tons of meds, and sometimes they help, sometimes they don't. I just wish sometimes I could give some of the people in my life Fibro, just for one day, because I couldn't wish this on ANYONE permanantly. But maybe then they'd understand. Yeah, what a day that would be, huh?

[ralph pelkey]

AMEN Im not creul but i wish every body in the world had fibro for one week {and no a good week either} that would be long enough for it to where on them and realize what we live with every stinking day.... Dont get me wrong I love life it just dont seem like life likes me right now.Im not in a varry good mood we got rain coming in and my body is letting me no it ...Ya no what really pisses me off is all these yound people just sittin around not doing any thing with there life just letting it go by and no plans on doing any thing with it.Not a thing wrong with them just flat lazy....Ive worked my hole life and now this man Ilove to work I love doing any thing but setting around like im FORSED TO DO NOW....OH YA the SSI you cant get because you so sick you cant even think about working has forgotton you even exist...I no a lady the got right on SSI for fibro dosent even take MEDS or walk with a cane THAT REALLY PISSES ME OFF and she gets around great like theres not a thing wrong with her WHERE THE JUSTIS...Theres got to be somthing we can do {HAS TO BE }if any body noes any secrets let us in on them... I went from making a good living to welfare just so i could see a doctor for treatment... Boy you talk about a kick in the but ive never been on welfaire in my life and at 50 years old look at me now is this what the future holds for me...The doctors told me i have a sever case of fibro i think if you have it its BAD....I fought cancer 2 years ago it didnt hold a candle to fibro I dont no can you tell i hurt really bad tonight can you tell im really sorry if i brought any of you down thats not my intentions im VENTING and i gess thats why we have this web site for all the good and to here the bad that lets us no how fruststratied we can become...please reply to all these storys and let these people no you care GOD BLESS r pelkey

[beakermom]

I know how you feel. I have had a damn bad day today. I can't even get up today. I get really sick of not getting up though. But at least we do have this site so we can vent. Anyway, I am just rambling. I just wish you encouragement. And know we're here for you. You can vent to me any time you want.