Guillain-Barre Syndrome

[livingwith]

I want to start out saying even though it’s said that GBS isn’t hereditary you could have shared the same trigger. My Mom had GBS 5 years ago and has completely recovered. I was diagnosed in October 2006.

I had been misdiagnosed twice before I found a good doctor. The first doctor just prescibed medication and the second docter just told just gave me a higher dosage. It’s now August 2007 and I’m now on the road to recovery. After 4 IVIG treatments, lots of therapy and a...Read the full article

[cbfuller91389]

Hi, My name is Courtney Fuller and I was diagnosed with Guillain-Barre Syndrome in December of 2000. I was in 11 years old and in the 6th grade. It started they told me when I had bronchitis in October of that year, I didn't start showing symptoms until around Thanksgiving of that year. I went to the doctors and she sent me straight to the emergency room because she was unsure of what was going on. The emergency room told my mother that I was severely dehydrated and gave me fluids and sent me home. When I went home I did not get any better, I continued to get worse. So I went back to the hospital. That time I had a different doctor who thought I was bulimic. The said I was dehydrated again and sent me home. Finally we went back and my mother told them to admit me and figure what was wrong because I was not getting any better. I was admitted to the hospital on December 4, 2000. I spent a week in the hospital and i was out of school for a month. They did all these test on me and finally they brought in a neurologist who did an EMG on me and let my family know that I had Guillian-Barre Syndrome. Not long after I was born in 1989 my Grandmother was diagnosed with Guillian-Barre Syndrome. My symptoms were not as severe as yours. I had weakness in my legs and needed someone to help me walk, it then progressed to my arms and my face. My facial muscles weakened and I could not smile or frown and when I slept my eyes did not close all the way. Having this disorder has taught me a lot. I try to live everyday like it is my last. I was forced to grow up and deal with the fact that I could not play the same way as other kids. I took me a while to recover, I still feel the effects every so often for instance when I spend a whole day at a roller coaster park I am physically exhausted. It will be 7 years since I was diagnosed and it has changed my life. I have just began college and am very exited to be here and still be alive. When I read your story it reminded me of what I went through and felt that I should share my story with you.