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Home » Guillain-Barre Syndrome Peer to Peer: AdviceonGBSforfriends

Advice on GBS (for friends)

Post a new topicby Alani on Tue Aug 07, 2007 1:54 am

Hi there!

I have a friend that has been diagnosed with GBS - i had no idea what it was until i started reading on this website...

Is there anyone that is still chatting about this on the forums?

What advice can you give to me regarding my friend?
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Alani
 
Posts: 1 | Joined: Tue Aug 07, 2007 1:50 am

Re: Advice on GBS (for friends)

Post a new topicby curt on Tue Aug 07, 2007 9:08 am

I would let her know she will get better and be able to have a normal live. The people I know that had the disease when they were younger are doing well with only a little residual numbness in the legs, but it does not effect any normal activity.
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Re: Advice on GBS (for friends)

Post a new topicby pkelley on Fri Aug 17, 2007 4:46 pm

i am presently suffering from this illness for the past 8 weeks,,,im home for a weekend pass...i know what others are going thru...dont give up hope and stick the the physio-therapy regardless of how strenuous it can be especially the burning and tingling and paralysis....gee its taken me almost 15 minutes just to type this cause nerves and hand coordination just wont work properly...best of luck to your friend
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Re: Advice on GBS (for friends)

Post a new topicby Kristal081670 on Wed Sep 26, 2007 7:16 pm

GBS is so hard to deal with. I have it, diganosed 8 years ago. I am 37-years-old, married and have 2 teenage children. It's been hard. The best advice I can give is to be supportive, but encourage independence. I'm a very stubborn woman...lol....and it was hard to accept help from friends and family, but the truth is I needed it and never would have come this far without help and encouragement from the people I love. You're a true friend if you hang in there and I know it's just as hard for you to watch.
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