Guillain-Barre Syndrome

[Guest]

My daughter was mis-diagnosed and after second opinion, was properly diagnosed with GBS It was 4 weeks from the inital onset of her symptoms to receiving IVIG. We have noticed a very slight change, but she is unable to stand or walk. She cannot lift her arms up infront of herself, nor can she push the toothpaste onto her brush. Was the IVIG too late in being administered? Any advise would be appreciated.

[Guest]

The recovery phase from GBS can be quite prolonged in some cases. Even in individuals who receive plasmaphoresis or IVIg, the course of an particular individual cannot be fully predicted. Her doctors would be able to best provide you with specifics about her recovery, which I hope will be rapid from this point on. Good luck.
[quote] My daughter was mis-diagnosed and after second opinion, was properly diagnosed with GBS. It was 4 weeks from the inital onset of her symptoms to receiving IVIG... [/quote]

[Guest]

We are now experiencing a similar situation to yours and I would like to know how your daughter is doing. Our almost-4-year-old received IVIG just after Thanksgiving and is undergoing 5-day/week physical therapy, but we feel she is getting no better. To the contrary, she is unable to put any weight on her legs without buckling and falling. Doctors may want her to repeat IVIG. I would be interested in knowing whether you found out any information on the timing of IVIG and/or the repetition of the treatment. I hope your daughter is doing better now.
[quote] My daughter was mis-diagnosed and after second opinion, was properly diagnosed with GBS. It was 4 weeks from the inital onset of her symptoms to receiving IVIG... [/quote]