Guillain-Barre Syndrome

[Booda]

I was diagnosed with GBS in December of 2007. Symptoms came on very suddenly. I was not able to walk without help from at least two people. I was in the hospital for 8 days and received the immune gamma Gobulin injections for 5 days. I was able to walk using a walker upon my release from the hospital. Within 2 weeks I was able to get by using just a cane and shorly after that I shed the cane. I've returned to work full time . My balance is pretty good but on occasion I do notice a little instablility. I have never got rid of the numbness and tingling in my arms and legs. Lately It seems to be getting a little worse and has migrated up into my buttocks and scrotum area. I also have been getting numbness in my face particularly around my cheeks. This has got me a little concerned. I have made an appointment to see my neurologist again in a couple of weeks. I've been reading online about cidp and was wondering if I could be experiencing this. I basicly want to keep an eye on it and wonder if these symptoms may be common to the recovery of GBS
Any help would be appreciated

[frank bullitt]

Booda,
Stand by, it has been my experience, the numbness and tingling seems to get worse after you get home and over the initial symptoms. I was diagnosed in Nov 07. I spent about 6 days in the hospital, and got home, still very weak, but NO side effects. Then about 2-3 weeks after I returned home, I seemed to get the tingling in my feet and fingers. Man it has gotten better and then worse, and then better again. I have talked to another person who had GBS and they tell me this is normal, and it will eventually go away. No time table, because it is different for everyone. I hope you start getting better, and "keep the faith". This is a very difficult to go through, but it can always be worse.

Take Care,
Frank Bullitt

[Booda]

Thanks for the reply Frank. I feel really fortunate because I have not had some of the severe symptoms others have had. It did not get to the point of having to be put on a respirator and
I just want to nip it in the bud before anything major could occur. It is nice (for my sake not yours) that someone else is experiencing the same symptoms as I have.

Thanks again

[bradmac]

I was diagnosed with GBS March of '08. I was not hospitalized, but the tingling is sometimes almost debilitating. It varies in severity, and sometimes I'm almost back to normal.

Last week it was not bad, almost normal. I began to hope. But right now I feel very weak in my legs. The tingling is from my feet to my arms, and the skin on my back is hyper-sensitive.

I thought I was getting over it last week, but it looks like it'll take a while. I'm just glad I wasn't as bad as others. My heart goes out to you.