[livingwith]

My grandmother and one of her sons have died due to complications from Huntington’s. My mother has tested in the gray area whatever that means. This test result has not given us answers, it has pushed us farther into the unknown. Who has it? Who doesn’t? My brother,sister and I are trying to make peace with this,but it’s hard. Everytime I trip over something or can’t find the words to explain something I think it’s Huntington’s. I feel guilty because I am cons...Read the full article

[KellyLynn]

Hello,
I read your post and I could not help letting you know that your not the only one either. I have known for 6 years that I am gene positive for Hunnington's and it was not until this year that I stopped thinking every little thing was me starting to show signs of hunningtons. I even go to the clinic to do research every 6 months and they tell me I am fine every 6 months and I still would think those things were the onset. Because it is the unknown we may always think...is this it in the back of our minds. My mom has hunningtons and I see people at he clinic all the time with hunnington and there is a certain look and you will learn what I mean when you are around enough people with hunningtons. I can go to the clinic now and sit in the waiting room and I can tell who has it and who does not yet. It is almost sad because they don't even know themselves sometimes. I know you worry about your child but do you wish she were never born? The answer I guess would be no and you she does not wish you were never born. Your mom do you wish she were never born? no, all of us our worth so much. We all have something and yes this disease is horrible to the core. We live long before it hits and the research is so close to finding a cure. Your child may not even have to deal with the disease at all. I pray that neither of you have to for yourselves. But if you do I pray for strength to make it daily with peace. Many Blessings to you and yours...KellyLynn