Huntington's Disease

[kscovil]

I am a divorced and remarried mother of 3, my biological father has HD and I was made aware of it back in Nov. of 07, alot of things started adding up, such as progressive memory loss, recent dislexia, and nerve damage in my brain that has been almost nonexistant. I have had a recent change in mood and depression so I decided I need the test. I live in a rural area so noone was familiar with it and I have received no counseling, just done alot of internet research. I am a week into waiting for results and I don't know if I am going to leave my husband,or he will leave me in the process of this. He doesn't seem to understand as well as I don't because all I seem to be doing is nonstop crying. I guess i'm here because while I am still waiting, I think I know the answer and I feel really alone. I need to know if anyone knows of a strong support group online, and I guess how you get through the wait period.

[tomfee]

hi, i know what you are going through and i really feel for you. i waited 14 weeks for my result and it was horrendous. thankfully i tested negative but other family members were not so fortunate. i too live in a rural area (of ireland ) and there were no support structures in place.I was really lucky to have an understanding and supportive partner.I dont know what i would have done without her.
i'll keep you in my prayers. try to stay strong.

[kscovil]

congrats on your negative results!! I am still waiting on mine, but I am learning to put it in the back of my mind a litle better, thank you for the prayers!

[kscovil]

i turned out negative about 3 days ago!!! what a sigh of relief! thanks for the support!

[Heather Dugdale]

I have HD myelf. I am married too. I you get a postive result your life is not over. It has only began. There are so much hope for this generation. This is where it stops. We won't have to be scared at all anymore. We have a future. We have hope. It does not have to be all bad. You might want to check out my postive living site. It is sadly all of the hope people with HD get. Don't let anyone tell you you are going to die if you have it. Don't let fear take over your life. I cried two days before i got tested too. I tried not to think about it. I put ways on my site on how deal with testing. How to cope. Life is not over with HD. It is beginging.


[moderator note: website address has been removed]