Huntington's Disease

[Jeff A]

This is my first time posting here, I am looking for answers I can not seem to find. I will explain my situation first and then ask the questions.
I am currently getting divorced from my wife of 13 years, she has Huntingtons. She is almost 32, we have a 7 year old daughter. I knew she had Huntingtons before we married, her mother has it and is almost gone now so I thought I knew what i was dealing with from the begining. I love my wife very much and do not want this divorce but, over time she has grown to hate me for reasons that dont make sense. I have often thought the burden of knowing her future was the cause of her anger towards me, she was tested at age 19 and never talked about it again, to anyone. She does get tests done, she does take some experimental drugs, but she never discusses it with me or anyone else and over the last several years has become very hostile and angry towards me. Now that we are seperated I have began to really look at what she does and things she says and question them.
She seems so irrational, so out of touch with reality sometimes, yet she can hold it together and do her job fine (as far as I know). I have agreed to give her a great deal of time with our daughter, far more time than I get with her, because I have thought she would not have that much time left to make memories. I am starting to question if that is the right choice? I wonder where all of the anger that she has always put on me will go when I am no longer in the picture.
My questions are these. She has a rep number of 46, is that high? I can not find any kind of scale to judge from. Is it high enough that the crazy things I see her do are the begining? Should a person with this disorder be in a possition to make judgements about hundreds of others peoples lives? She works for a city health district, and is in charge of hundreds of families medical well fare, yet her own medical needs are neglected and concealed.

I just done know what do in regaurds to my daughter, let her go with mom and hope for the best or fight her for the right to keep some control over the situation, because it is only going to get worse and now that we will no longer be married I will be left in the dark.

[gjtds95]

I am new to this site as well. I feel for your situation because I divorced my HD husband about the same time he was being diagnosed. Looking back I think alot of the problems we were having could be attributed to his personality changes from Hd that we didn't know about at the time. That being said, it wouldn't have helped because he was in denial and didn't take care of himself. We had a daughter who was 2 at the time of our divorce. He lived with his mom and had weekend visitation rights that were supervised by his mom. I suggest you have a custody arrangement that includes provisions as she worsens for the safety of your daughter becasue your wife will eventually be unable to care for a child before she is willing to admit it. I havn't read anything about cag repeats causing more aggrerssion in people.
It does causes an earlier onset of the disease however. 46 isn't really that high. God luck and keep your daughter safe.