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Huntingtons Disease????

Post a new topicby Guest on Tue Apr 09, 2002 2:07 pm

My family has a rare genetic disease passed down from my father to two of his three children. It is similar to Huntingtons Disease, however my siblings do not have the gene and the hereditery pattern is not there. Is it possible that this is an uncharted disease, we have mystified the doctors since 1962??!!!!!????? We do not yet have an official diagnosis. We just seem to be a "mystery" as the director of a nueroscience center recently said.
If anyone has any advice please help!!!!
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Re: Huntingtons Disease????

Post a new topicby Guest on Tue Apr 09, 2002 9:48 pm

It sounds like a very interesting case. Perhaps other browsers have some advice for you. If you have not contacted the NIH (National Institutes of Health) it might be a good place to get more information. Good luck.
[quote] My family has a rare genetic disease passed down from my father to two of his three children. It is similar to Huntingtons Disease, however my siblings do not have the gene and the hereditery pattern is not there... [/quote]
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