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tested negative in 1994 but still unsure

Post a new topicby karebear on Sun Apr 06, 2008 11:05 pm

Good evening..My Father and Sister both suffered with this disease. I just had my first child at the age of 25. Then started the procedure of predictive testing. I was unaware of this disease until I had him. in 1989. I had no idea that my family had this. I did not even know what is was. My Mother wanted to protect me, but knew that she could no longer. The "test" did not come available until 1993 as we all know. Prior to that it was other testing. Doctors, tests PET SCAN, more Doctors and more tests. on and on..but then I received my results ( i remember it like yesterday)in which I went from 50% to 90% . Then the meetings with the Pyschiaritrist, doctors again.. THEN when the discovery was made, I was able to have the test based only on my Sister and my Mom ( who does not have it ). Apparantely I was the second person to have had the test. My Father passed away in 1978 at the age of 48, therefore no banking of his blood. My Sister passed away in 1992. She had JHD. She was only 35 The test came back negative 1994. My question is how acurate was this test back then and should I consider to be retested?? I am 43 now. At times I feel not quite right, if anyone knows what I mean? I suffer from migraines alot, where I tend to have awkward movements and speech. Now when I am stressed I tend to do the same? Can anyone give me some input on this?
Thank you so much
K
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karebear
 
Posts: 1 | Joined: Sun Apr 06, 2008 10:47 pm
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