Movement Disorders

[livingwith]

my name is ralph pelkey i am a 50 year old man.I dont know what is wrong with me.I was told i have fibro.but the last couple of months my pain has gotton so bad and i feel like my body is turning to stone Im getting to the point where im in a wheelchair losing control of my arms and legs.And i just cant get to the right doctor becuse im on medacade.
I just found out that there was a plant over in guam that was like wheat to us they used it as a filler in floor and other foods.And it causes ALS ...Read the full article

[GuestOne]

Hi Ralph, I'm sorry you are having such a time with pain & who knows what else.

You may want to study Lyme disease. Contrary to popular belief it does occur throughout the entire USA.

If you have any doubt contact your state board of public health and ask for the epidemiology division. Ask them to send you ALL the Lyme case counts. When you get this information, look at the number of cases of Lyme disease in your county. If the number is two or greater, then your county is considered endemic by the CDC. See the CDC's case definition for Lyme disease, specifically the definition of an endemic county. It only takes two cases of Lyme in one county for the county to be considered endemic for this disease.

Lyme tests are very unreliable because the disease supresses your immune system. The CDC says Lyme
disease is a clinical diagnosis. The diagnosis is based upon your symptoms and exposure, not test results.

Contact your state support group for referral to a Lyme literate physician. You may want a thorough evaluation for this disease. Study the information on the Lyme Disease Association and the International Lyme and Associated Diseases Society websites (listed below). Especially read about the inadequacy of testing.


CDC Incidence Map of Lyme Disease in the USA...find your state
Lyme Disease Association
http://www.lymediseaseassociation.org/Maps/index.html#

CDC Incidence Map of Ixodes scapularis and I. pacificus, commonly known as the "Deer tick",
http://www.cdc.gov/ncidod/dvbid/images/tickmap_lg.gif

184 Lyme symptoms
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=021063

Symptom list/discussion
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=043100

WebMD definition of Lyme disease
http://arthritis.webmd.com/tc/lyme-disease-topic-overview


Symptoms of Lyme Disease medical references
http://www.lymeinfo.net/medical/LDSymptoms.pdf

Nerve Damage Due to Lyme Disease
http://thehumansideoflyme.net/index.php

Lymenet Medical Discussion Board
http://flash.lymenet.org/ubb/ultimatebb.php/forum/1/30/0

International Lyme and Associated Diseases Society
http://www.ilads.org/

Canadian Lyme Disease Association lots of good information
http://www.canlyme.com/

California Lyme Disease Association
http://www.lymedisease.org/


Lyme videos:

Under Our Skin by Andy Abrahams & Open Eye Pictures
http://www.apple.com/quicktime/guide/entertainment/

San Francisco Lyme Disease TV Talk Show
http://video.google.com/videoplay?docid=-7379547551496279899&q=lyme+disease&total=265&start=10&num=10&so=0&type=search&plindex=5

Excellent video on Lyme Controversy- ABC News in Virginia
http://cfc.wset.com/external.cfm?p=lyme&menu=news

[stulchinsky]

Hello, this is a forum moderator responding. In addition to the contributions of others in this forum, you can find physician-developed and -monitored information on Lyme Disease symptoms here: http://www.podiatrychannel.com/lymedisease/index.shtml.

You can also read the stories of others dealing with Lyme Disease at this link: http://livingwith.podiatrychannel.com/lyme-disease/.

Best wishes to you all.

[GuestOne]

Thank you.

This is a good description.