Multiple Sclerosis

[jenninext]

Hello, I am new to this forum and I am posting here because I am about to crack. I cannot handle my symptoms and pain at the moment and I am looking for some advice. I was diagnosed with Systemic Lupus in 2004, but I always have intermittent positive ANA labs and I do not seem to get the butterfly rash that 85% of Lupus patients get. For the last 4 months I have been having horrible neurological symptoms. Burning, stabbing pains in my legs day and night and pin prick sensations in my legs and severe itching all over. The itching is painful itching...I don't know if that makes sense. I also am having severe leg pain deep in my legs day and night and I can't sleep. I get weird tingling sensations in my arms and legs and feet and lately I am having blurred vision. I also get strange buzzing sensations in my head...they are kind of like zaps that start in my head and then go down to my hands. This is happening every few minutes now and only lasts a couple of seconds but I can't drive or walk without holding on to someone. I get really dizzy and the world around me looks cockeyed briefly. I just moved to a new city and I don't see my new Rheumatologist for another few weeks. I don't know if I should be making an appointment with a neurologist on my own or just wait it out. I am used to constant pain but the numbness and zaps and dizziness is too much. I also can't take the burning pin pricks in my legs anymore. I feel like I am going crazy!!!

Sorry for the long post -

- jenni

[kimon24]

Do you have any other Lupus symptoms? My daughter has MS and does have a positive ANA which from what I understand is common with MS patients but I would ask your doctor. Maybe he can order an MRI and check for MS

[jenninext]

I have Raynaud's, arthritis, extreme fatigue, and I have had 4 seizures in the past...although I haven't had a seizure in years. I also have fibromyalgia although I have a hard time accepting that diagnosis. I have a hard time accepting the Lupus diagnosis as well. I am just at my wits end with this seemingly neurological stuff. I'm crying constantly from lack of sleep and driving my family nuts. I have had 4 consecutive positive ANA tests and then, according to my rheumatologist, my ana's are intermittently positive. I think all my other blood tests are always okay...

Thanks for your response.

[Linda V.]

I ran across your post while trying to find just ONE other person that might be having the same symptoms as me. I believe it may be YOU! I have tried to explain to my dr. that I get these unexplained PINS sticking me on various parts of my body, with no warning. Sometimes, it is as if someone sticks a needle in me, very quickly. It can be on my legs, back arms, etc. Some of these sticks are extremely painful. Thank goodness, they are very quick! It often happens just by having material touch my skin. Anykind of clothing, etc. I also have itching that sometimes drives me completely nutz!!! There is no pattern to any of this, and it often happens during the night, or while I am just watching tv. I have psoriasis, and Psoriatic Arthritis. My RA does not understand these symptoms. I keep telling him I have SOMETHING ELSE going on besides his diagnosis. I believe I also have Lupus SLE. It is not terribly unusual to have more than one autoimmune disease. Would love to hear from you and how things are going..Linda

[julygirl]

Hi Jenni
I don't know if you have ever had an MRI of your head done but that would be what I would advise you to do first off. Every one of the symptoms you mentioned, I had! I was diagnosed with MS 2 years ago, Im on treatment now and am doing better. If you can manage to get your doctor to order a MRI of your brain, it could totally make the difference. I so understand how your feeling. I wouldn't wait for your appt. (think you said it was weeks away?) I would try to get it done sooner then later. Good luck and keep me posted. ([moderator note: e-mail address has been removed])

[Linda V.]

Hello and thanks for your response. I had not considered MS, because my joint problems are not from weakness. They are inflamed, painful, and snap, crackle, and pop! It moves from one area to another. I always thought that with MS I would have extreme muscle weakness? Is that not correct? When I move my knee up and down, it sounds like velcro! Anymore advice? I appreciate it..Thanks

[Rajjpuut]

Hi,

First off, here's some big-picture websites that might get you some new info:

robertringer.com/status-quo.html

en.wikipedia.org/wiki/Max_Gerson

gerson.org/

Some other things: Your symptoms do NOT sound like normal lupus symptoms. Could you be having problems with the medication?

The AMA considers lupus as an auto-immune disease, life-long and incurable. In Europe lupus is not always seen that way and I hear they have a lot more "luck" with lupus including CURES. Obviously, the problem with the AMA appproach is that they tend to give expensive and harmful medicines without any hope of a cure.

One household cure popular in Europe is "FOOD-GRADE hydrogen peroxide (H2O2)." They begin with three drops in a drinking glass of either well water or distilled water, three times daily and increase very gradually over a month's time to about eight drops. I think it costs about $10 a pint and you usually get a dropper sent to you. In Europe many doctors believe that what we call "auto-immune" diseases here are just instances where cells of the body are not able to effectively process oxygen. FOOD-GRADE hydrogen peroxide acts like a hormone and "nudges" the cells into a state where oxygen processing is highly efficient. I'd find a doctor that you trust that seems to look at the body from a holistic sense and see what he says about these ideas and the Gerson treatment. If he pooh-poohs the idea, I'd find another doctor that actually is interested in curing people, not just giving them powerful and potentially dangerous medicines. Good luck.

Bob