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undiagnosed

Post a new topicby livingwith on Tue Aug 28, 2007 12:36 pm

I have been suffering now for 4 years. it first started with my gp treating me for an infection in my ear. I have had many tests including 5 nuerologists [neurologists]. They all come to the same conclusion that i have got rapid degeneration of the brain cells. Since then i have deteriorated. I have balance problems and poor coordination. My muscles are also degenerating. I can not do anything.
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livingwith
 
Posts: 8060 | Joined: Thu Aug 09, 2007 2:36 pm

Re: undiagnosed

Post a new topicby meepeekay on Sun Sep 02, 2007 6:43 am

i am sorry you have not got a diagnosis. i have been diagnosed with msa and it is interesting about your ear infection, as i have a build up of dry skin in my ears. i have also known of others who suffer the same problem. are there any others who have this trouble?
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meepeekay
 
Posts: 2 | Joined: Tue Aug 28, 2007 11:44 am

Re: undiagnosed

Post a new topicby sisterno2 on Mon Sep 10, 2007 12:19 pm

Hi...My brother who is 53 years old was just diagnosed with MSA last week. He suffers also from psoriasis. His MSA first sympton was in March of this year. He has been to so many doctors and they have finally diagnosed him with MSA. He has deteriorated so fast. He has to walk with a cane or walker, sleep with oxygen, can hardly speak, he stutters so bad. I am so concerned for him. Is there any hope for treatment of this disease?
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sisterno2
 
Posts: 1 | Joined: Mon Sep 10, 2007 12:10 pm

Re: undiagnosed

Post a new topicby akabones on Thu Mar 20, 2008 12:50 am

My father was just diagnosed yesterday with MSA. We looked for answers locally (in our city), but after numerous tests and treatments...all unsuccessful, we looked further. Unfortuntely, my suspicions were correct (diagnosed with MSA). Balance has been a major concern, but most of all his speech has been affected. The stuttering is so severe he cannot communicate. Does anyone have any suggestions on how to help with communication?
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akabones
 
Posts: 1 | Joined: Thu Mar 20, 2008 12:37 am

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