Multisystem Atrophy

[Wendi]

My mother was diagnosed with MSA about 4 years ago. She has lost a lot of motor function. She uses a walker in the house to go between the bed, bathroom and couch. She uses a wheelchair when we can get her to leave the house (which is rare because she is embarressed of her condition now). She has severly slurred speech. She also has a lot of the parkinson aspects such as tremors and she has urinary issues. She has low blood-pressure, which has become more severe lately and has caused her to fall more. This is a horrible disease that has really debilitated this once very active women. The most frusterating part is that the doctors have told her there is no treatment. It's horrible having to wait and watch her deteriorate and be unable to do anything. As many treatments (even experimental) that there are for Parkinsons and MS, you would think there is something out there to help her. Even just to improve her quality of life a little would be wonderful. Please, I am begging that if anyone know of any doctors who are actively researching Multi-System Atrohy or have heard of any treatments to let me know. My mothers neurologist and the mayo clinic have so far told her there is nothing that they can give her. They say the drugs for MS and Parkinson don't work for MSA and can cause it to worsen. Please if anyone has Any sugessions, let me know!

[pamm]

Hello
My name is Pam & my husband Mike has msa. He was diagnosed about a year ago but has had it for about 3 years now. The progression is getting much faster now & things are getting much more difficult. I cant offer you any help but if talking to someone in the same situation would help please get in touch.

[Jackeychu]

Dear Wendi:

Do you had heard about stem cell treatment before? I think it maybe helpful to your mother.
I had a friend,his father had MSA for several years. after the treatment, he had great improvement.

Jackey

[elus]

Hi. I'm in the same boat as you and would love to speak with you, maybe we can come up with ideas to help our moms. Please get in touch if interested. God bless!

[Jackeychu]

Dear Wendi, we think we can help you. If you want to seek for a treatment, I think I can help you find a doctors who can treat the MSA, he had treated a MSA patient from USA, now her condition is very good, and she achieve very good improvement. If you want to contact with that patient, please send email to me, I can help u
[moderator note: e-mail address has been removed]

[sh15rose]

I'am 51 years old and have been diagnosed (about 2 years ago) with MSA. I go to the gym still and work still. It sounds like I will go down hill real fast next year.

Have you discovered anything new to share with me about your mother?

Cheers
Sue