Myasthenia Gravis

[livingwith]

I was diagnosed with MG in February 2007. I was 17 years old. As a younger teenager I had always had some weakness but doctors told me it was because I was growing and was put on iron tablets more than once.
In grade 11 I started a new high school and joined the cheerleading team. I was a third because I am very tall and therefore can’t be lifted into the air. It was then I started getting annoyed with being weak, but I figured it was because I was so skinny and so I worked out mo...Read the full article

[lera]

hey thanks,You know this is the first time that I finally hear about someone my age that has the desease that I have,Alot of people dont understand,People say Im just lazy all the time, I alone about 2000km away from home at varsity when I was diagnosed with this, started with consant double vision for about a year, my dr actually though it wasnt going to progress any futher, than I started loosing a lot of wight and looked tired and exhausted and sick,my face structure changed and I loooked like a short old woman,it was terrible alot of romurs spread that I had AIDs,neway when I was finally under the corrects treatment and medication,I looked 100% better and I could say normal,But I cant stand for long periods and I dnt go out cause I get tired too quickly,This illmess has made me short a few years of varsity cause i missed a lot of school over the couple of years,cause I was extremely drowsy,tired of hospitalised its really annoying, This yEar Itold myself that I gonna finish varsity,no matter what it takes even have to study in bed,,,I n=moved back to my dads house its totaly annoying,, he doesnt take my desease serous at all,he says Im just spoilt and lazy,,we constantly fighting cause im slow and I get tired quickly when I doing the chores around the house its really depressing when you kno thats not really the case and you are pushing as much as you can,I guess those who dnt have mg will never understand,,but theanks for the comfort and the inspiration

[Nyle]

I am so sorry that your family does not understand the seriousness of your illness. I watch my 21 year old son everyday. He is full of so much drive and passion.....his mind is willing but his body won't let him. He has severe myasthenia gravis, the only good thing is that he has no problems with his eyes, the only thing is they run water every now and then. I pray to God for a miracle for him and you and everyone with this illness. Be strong, listen to the rules, do not stress yourself that is like a complete workout. Eat plenty chicken, salmon, mushrooms, and brocolli good for the immune system. And mostly, be positive in your mind and it will help to heal your body. I know its easier said than done, as I live with my son everyday, encouraging him through this depressive time. Have courage, and REST.


Hyacinth