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symptoms of myasthenia gravis

Post a new topicby livingwith on Wed Feb 04, 2009 3:51 pm

My MG first presented its self to me by a droopy eye lid 9/2008. My other symptoms were slurring of speech,and exhausted feeling tongue.I was first seen by a opthamologist, who sent me to a neurologist. All my blood work was negative for antibiodies, and the diagnosis was made by symptoms only.
I was ordered mestinon, which gave me nausea and diarrhea, so I did not take it as directed. I took it only 1 to two times a day, instead of 3 times as ordered.I have not had any symptoms for approximatel...Read the full article
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livingwith
 
Posts: 8060 | Joined: Thu Aug 09, 2007 2:36 pm

Re: symptoms of myasthenia gravis

Post a new topicby mommalu on Sun Mar 15, 2009 9:36 pm

You sound like you have a classic case of MG. Did they do all of the bloodwork? Maybe get a 2nd opinion or better yet, go to Mayo Clinic in Rochester - they deal with hundreds of MG patients a year, as opposed to a typical neurologist only deals with a few cases in a career lifetime. I would not mess with the dosage prescribed, have you talked to your dr. about the side effects? Good luck and hang in there. Mayo did wonders for my dad, who had the exact symptoms that you have!
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mommalu
 
Posts: 2 | Joined: Sun Mar 15, 2009 1:55 am

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