Myasthenia Gravis

[ianc]

does anyone know if my aches and pains are related to my myasthenia gravis The pains start at the bottom of my back and top of my legs and then turn into pins and needles and after a while i find it painful to stand or walk then my foot will seem like it is going numb. If there is anybody out there that has had these symtoms could they please let me know how they went on with any treatment they had thanks

[melkov]

Sounds more like Sciatica, Did you hurt your back recently? The pins and needles thing is usually a compressed nerve.

[sibso]

HI, I am new to this forum, I have had mg all my life although I was only diagnosed 8 years ago. One of the major reasons it took so long to diagnose me was because of my muscle aches and pain. Most neuros will tell you that pain is not one of the symptoms of mg but I have always had pain when I over do it and at times it takes me months to get the pain under control. It does help to take the mestinon, if you can. Pins and needles happen to me occasionally mostly in my arms. Rest seems to help. good luck Sibso-

[did]

Pins and needles were some of my first symptoms. When I am really tired I get pins, needles, aches and numbness in my legs and arms. I have trouble walking at times because my legs get really weak and numb. I have tried jumping and shaking my legs to "wake" them up, but the aching continues and goes away with rest. I have been through all sorts of testing. I had multiple EMGs, CTs, and MRIs and they all came back normal. My left eyelid droops everynight and when I am tired. No one has been able to give me an official diagnosis of MG.

[hopeforcure]

I had the same symptoms in my arms. Well somedays it would be one arm, other days the other and somedays both or neither. I had a hard time describing the pain because it was hard to even call it pain. It would start out as a fatigued feeling and then turned into pins and needles and switch between the two sparatically. Occasionaly there would be muscle cramping. Now I am on mestinon, so the symptoms aren't as severe. My suggestion would be to keep a journal, or mental note of when the symptoms are the worse. For example my symptoms are worse about 30-60 mins after an activity, and walking upstairs make my symptoms worse. I maybe able to run up a flight upstairs now, but in a few I'll be sore, so instead I take them nice and easy. I hope you can find what is trigering your pain, and treat it.

Hope this helps.