Myasthenia Gravis

[jrivera]

Can anyone volunteer information on acute onset of chills and tremor in relationship to MG? Patient is also a diabetic.

[peacequeen]

I started having tremors when I went into crisis a couple months ago. I spent a week in ICU, I saw 5 neuros and none of them knew why. They said they didn't believe tremors was a side effect of MG. The tremors have continued. At my weakest, they are worse. I still don't know why. I have chills off and on because I had a hysterectomy (hot flashes), and I'm hypothyroid. MG has been known to cause hot/cold flucuation but most myasthenics suffer if they are in the heat.

[sewray]

I too have MG. I was Dx in Sept. of 2008. I have been going to different neuroligists through out that time period.
I have found that I have had a great weakness to hot and cold temperatures. The MG sets in stronger during these time periods that I am exposed to the termperatures. I don't know what to tell you regarding that. I offer my support. I have also had a problem with tremors and the neurologists that I have spoken with have just said that MG does not cause that and I am now searching for a neurologist who will listen to me and my symptoms. It is a frustrating process. I am currently on up to 18 tabs aday of mestinon (60 mg tabs) and 35mg of prednisone.
This reply is not much help for you medically except to say that there are people out there just like you.
I would keep searching till you find a doctor who will listen. That is what I am doing. I refuse to stop. I was just terminated from work due to the MG and not being able to work for the past 9 months. I am finally at the point to work at least part-time, but it will have to be in a lower stress related job. My company won't hire me back until the doctor releases me.
Goodluck.