Myasthenia Gravis

[azeem]

Hi,

My wife has just been suggested for MG (Myasthenia Gravis) tests by her Doctor and she went through Blood tests and EMG Test. Blood Test shows the MG on Intermediate Stage EMG suggested MG is positive

Here i like to mention her history;

• Idopatic Urticaria for last four years
• Hypertensive congenitally
• Asthma by birth congenitally
• Different type of Skin disorder is found in her all siblings
• Foot pain
• Back Pain
• Tardiness (when lies on bad it’s really hard to get off)
• Spinning
• Knee Joint pain
• Brucing
• Double vision for last few months
• She had a respiratory failure three months back and Doctors diagnosed (Idiopatic pulmonary fibrosis) she went really severe however after 20 days ICU treatment she survived and started recovering now her chest x - ray seems all Ok which were really patched at the time of that crisis.

She is on steroids dosage for last four years with reference to her Urticaria disease.

We didn’t start the MG (Myasthenia Gravis) treatment as yet and she is on her regular steroid dosage.

She just has conceived a week back and pregnant

However I m seeking a suggestion that for which Doctor we need to go either a General Physician or any Neuro Specialized Doctor or Other Specialized domain Doctor we need to look for, and what are the other preventive and treating measures she needs to follow,

If any one can suggest?????????

Azeem Anwer

[gary g]

azeem,
i feel your pain. if it were my wife and not me i would be beside myself.
i also have multiple disorders. as to your question about what kind of dr to go to i would absolutely go see a neurologist. i am a disabled vietnam veteran so there was an entire team at my disposal.
i was dx about 9 yrs ago and opted for the thymectomy followed by mestinon. after researching steroids i had reservations. my symptoms are few now and have been for years. every now and then i do have an mg crisis but not as serious as in the past.
i can't say anything about the possible contraindications of her other ailments but a neuro should be able to sort all of that out. the internet has been a very useful tool for me and i take nothing for granted. together you both can beat this. it helped me to have married a very patient and caring nurse.
hope this has helped a little bit. god bless. i think positivity is most helpful.
the mind is the most powerful medicine.
gary g