Myasthenia Gravis

[diana53]

does anyone experience severe photopobia with ouclar myasthenia gravis

[Billie]

Hi..
OMG..THE LIGHT!!! Yes, I suffer from photophobia with the effected eye. I can't hardly stay on the computer for the light. I wear the darkest sunglasses I can find when I go outside.
The light causes my neuralgia (trigeminal nerve) to act up. I get shooting pains from the back of my head to my eye, and my forehead and right side of my head near the part line in my hair is so incredibly sensitive, I can't hardly touch it.
I was just diagnosed a few days ago. I have suffered with what they called Horners syndrome for the last month. After extreme physical exertion, my eye was drooping..but, my pupil was also constricted on that eye. So, after all CT's and MRI's of the head, they called it horners caused by a migraine.
Now, they are saying I have MG with Horners. Still not so sure what I have. My ACH level was 52.
But, yes..they light is horrible.
Billie

[CherieFisher]

i have to stay in dark and suffer extreme migraines. pain relievers make me feel worse. see my post called extreme light sensitivity because i had never heard of photophobia.