Neurofibromatosis

[livingwith]

I have nf1, my mother has it, and my youngest daughter has it, right now she is 13 with only the cafe’ au lait spots,(which she hates, but I told her some guy is going to fall madly in love with her, and her spots, period) and she is gorgeous, perfectaly round face, out of the 3 of us, I had the abnormal growth of bones, so the right side of my face and body is longer than the left.
I am 40 and as I get older, the more fibros appear. It aggrivating living in such a “perfected driven...Read the full article