Neurofibromatosis

[livingwith]

i have been living wth nf for abput five years. my mother and grandmother have it. i havent really been taunted or anything about it cuz noone really knows. i have 2 brain tumors and i had spinal surgery twice i had 3 tumors on my spine. its been hell but im getin threw it. im only 16 and i dont worry about nf cuz ima live my life with or without it.
i have to much life to live. i love myself. i like to think nf is a disorder not a disease. i dont care what people thinks about me if they dont l...Read the full article

[kaela]

hi. i was wondering what type of nf you have i have schwannomatosis and i've had 11 spinal operations mine started when i was 15 which is average for that tpye. i know how tough the spinal ops are and I love your attitude to it thinking that way that will get you through not only nf but anything that life throws at you. Well done ,keep it up your an inspiration to us all.