Neurofibromatosis

[livingwith]

how hard must it be to hear that you will not get old before your conditions kills you, my uncle was a child when he found about nf and has been great stoke threw the pickin on and teasin as he gets tumors by his nose. now a grown man been threw so may operations and chemo and radio to be told a month before his girlfruend is expection an baby he has got 2-3 years how much i did not wanna hear the words they how know find a tumor they cannot opertate on at age of 32. omg its hard but he battlin ...Read the full article