Neurofibromatosis

[livingwith]

i am 30 yrs old and i have NF1. This was started growing when i started my period age 12. And now I am still hoping that i will be cure. I am working in the Homemcare and expose in public sometimes i felt isolated and empty because i don’t fell i am accepted of the society but i am the only one who can help myself. i always wear turtle neck and longsleeves top just to hide my skin i felt envy to those ladies wearing expose shoulder and neck but i don’t have the nerve and as possible ...Read the full article

[iza]

Hi I'm 33 years old. I always had the cafe au late spots and in the 7th month of pegnantcy the bumps appeard but never ever I had coverd myself. I have them on my trunk, arms and now, legs.
I don't really care what people think, at least not now!
You are not alone and please be happy! You have a job, you do something that you like so please engoy yourself!

[snowbear]

I can imangine how at a delicate age of 12 this started to happen when you are growing up..Please try not to let other peoples ignorance get to you..I lost my leg to NF1 and other peoples rudness can hurt. Please try to be a bigger person than they are don't waste life or not enjoy life because other people are ignorant..Their is a NF support group please join and take a look at the site. IT has useful information and people who feel the same was you do..Please take care. Log on to the NF board index page and talk to others with this problem.

[snowbear]

Please go the 'The Childrens Tumor Foundation'...Its for adults and children with NF People just like you who can talk to others who can care and share our life witj NF please give it a try.