Neurofibromatosis

[livingwith]

I always had birthmarks as a child. I did not start getting the bumps on my skin until I was 30- that was in 1995.I remeber because it was about the time I got divorced.Could be that the stress made it appear-I dont know. It never bothered me at all but I had a large mole( it was a neurofibroma) removed I think it was in 2003.that was when I was diagnosed with neurofibromatosis
Some people look at me and ask about it or ask me whats wrong with my skin,It never really bothers me,especially now t...Read the full article

[billybags]

Hi
I find your article interesting. I was born with a tiny birthmark on my face which left me. The first lump i had was when I was 9 years old, got it surgically removed by a "butcher" doctor who nearly crippled me.
However, it was only in my 30s same age as you when I got lots of little moles I would call them on my back and that was after a break up - broken engagement. I also believed it was stress that caused this. This was in america, I decided to go to a doctor who informed me that if I was pregnant I probably would have a deformed child, and if the cysts were deeper, I could drop dead - charming, eh?
So, in one day I was dumped by my financee not for my health for his own personal issues he faced in himself, told I could never have children and then told I could drop dead ...?
Good job, I have strong faith ..... by this age, I am meant to be deaf, blind deformed ... that is 20 years on ... and guess what guys I'M NOT.
I started going to a lazer guy .... who used to take them off for me ....
Now, I look good for 50 ... look like 30 ... yet feel ugly and terrified that men would never find me attractive, never stopped them though ...
I have heard that there are cures that they are using in third world countries ... for neurofibrmitosis, somewhere in the states, a couple had a child who was severely damaged ... and this professor helped, and the child is ok now. How come, no ones speaks of those things???