[livingwith]

i am jen 29 y/o i think i have NF1. nobody really tested me to see if i really have it. but most of the time when i go to doctor they always tell me i have it. none of my family have NF. i guess its a mutation. i noticed the bumps when i was in junior high. the spots have been there since i was born but my parents thought it was just freckles and birth marks. i have a few of the big bumps on my back, legs, feet and most of it are like dots or as big as a pimple. i dont see nor feel any nurologic...Read the full article

[lollybabe]

Hello Jen
My name is Louise, I too have nf. Its not a very nice thing to have and although i have a mild case it still makes me feel self concious. I have had a few removed also but I still feel down. I have met somebody and we have two children they have no sighns of nf yet so I am hoping that they dont get it. You should not feel like you will never meet anyone as there is a special person for everyone.I do wish I could be normal though as I hate feeling like this. If you want to chat just send a post back.
Take Care
Louise x

[brownsugar]

hi Louise. thank you for the message. i have a lot of questions going through my mind everyday. i cant have good relationships. i wanted to chat with you. i have aol and yahoo. but i use yahoo more often. this is my email address...([moderator note: e-mail address has been removed]) i know my username is funny coz i feel that way all the time. lol. i am looking forward to chatting with you. i have never talked to anybody with the same condition as me. it would be a reliefe to talk to somebody about this.

thank you for replying to my story.

jen

[lollybabe]

Hello Jen
So pleased you have replied, I will def Email you so we can chat some more. I have never spoken to anyone with the condition either so Im looking forward to chatting. I will Email you Tomorrow(Monday) Speak to you soon!
Louise x