Neurofibromatosis

[livingwith]

Hi. I am a 34yo male. I have been diagnosed with Neurofibromatosis a few years ago. It is hereditary. My great-grandmother had it, my grandmother had it, my mother has it and I have it. My other siblings did not inherit the gene at all. The neurofibroma I have is only on my scalp. I have quite a few of them. I’d like to have them removed but I”m nervous. I constantly wear hats to hide it. I am very self concious about anyone taking my hat off in public and I have a few things coming...Read the full article