Neurofibromatosis

[livingwith]

Hi my name is Tina and I have neurofibromatosis I was diagnosed when I was a young child. I have had multiple surgeries and looking at another here not too far away. I have a VP shunt for hydrocephalus, I also have thyroid tumors that are causing major problems as we speak. I would love to visit with others that have this disorder/disease. One positive thing is I am going to school to be a nurse.
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