Neurofibromatosis

[livingwith]

HI I’M 26 YEARS OLD AND WAS DIAGNOSED WITH NEUROFIBROMATOSIS IN 2001. I WAS TOLD I HAD A TUMOR ON MY NECK. AFTER THE SURGERY THE DOCTOR TOLD ME HE WAS ONLY ABLE TO TAKE 1 TUMOR OFF. I WAS SURPRISED BECAUSE I THOUGHT I ONLY HAD ONE. MY ARM IS SLOWLY DECAYING BECAUSE MY TUMOR CAN’T BE REMOVED WITHOUT RUNNING THE CHANCE OF PARALIZING MY ARM. I HAD ANOTHER MRI DONE RECENTLY AND NOW I FIND OUT I HAVE MULTIPLE NUROFIBROMAS ON MY SPINAL CANAL. I DON’T FEEL ANY PAIN, EXCEPT FOR THE NUM...Read the full article