[livingwith]

when i was little i always had bumps on my arms… my mom just thought it was nothing but one day my mom took me to the doctor! I had type 1 NF. my life turned upside down… ever since then ive been getting radiation and chemotherapy treatments!
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[amanda999]

i have a son whom was diagnosed when he was 2 yrs old. he is now 12 and just starting to get the bumps on his skin. the doctor said he would start to get the bumps when he goes through puberty. how old are you?

[kathiwolfeyes]

I am now 44, but I did not start getting the bumps until I was 30. The doctor said it can be passed down to the kids and they recomend those with NF not to have any. I had my daughter when i was 19. She does not have any signs of it yet, she does have a few small moles but no bumps= hopefully she will not get them.