Neurofibromatosis

[livingwith]

Sometime’s I get so mad I curse NF I was diagnosed in the early 90’s at first I thought ok how bad can it be but boy after a few years it has gotten bad I use a power chair and a walker,Thing’s That I can not do I was to a Dr recently I was told there is one on the C7 I do have multiple tumor’s also I have found very small one’s on my scalp .There are time’s I just am about ready to shave my head because they are so bothersome .
I hate them sometime’s...Read the full article

[snowbear]

[quote="livingwith"]Sometime’s I get so mad I curse NF I was diagnosed in the early 90’s at first I thought ok how bad can it be but boy after a few years it has gotten bad I use a power chair and a walker,Thing’s That I can not do I was to a Dr recently I was told there is one on the C7 I do have multiple tumor’s also I have found very small one’s on my scalp .There are time’s I just am about ready to shave my head because they are so bothersome .
I hate them sometime’s[hc_livingwith=livingwith.neurologychannel.com|/neurofibromatosis/20080722_5897||20080722_5897]READ[/hc_livingwith][/quote]


HI! do you know about the NF support Board? its nice to talk to others who understand and may be going through the same things we are..People can share stories and information..Its a nice place to see that you are not alone. Log on to NF support group. Ot the Childrens Tumor foundation I hope you find it..Iam snowbear on that one to. Best wishes to you.