[SherryC]

I have NF1 and have numerous cysts on the outside and inside of my body. Some larger than others. The last MRI showed I had a cyst that took up about 60% of my left lung. I was wondering if anyone with NF had trouble with vertigo? I especially have dizziness when lying down, rolling over in the bed or even leaning my head back when at the hair salon and having my hair washed.