Neuropathy

[livingwith]

Call me a dedicated daughter and niece because I lost my mom 20 mos. ago, when she became bedridden from complications from PN [peripheral neuropathy] and CMT [Charcot-Marie-Tooth disease].
Immediately after, her brother’s own PN and CMT got worse, and he’s battling these crippling and debilitating nerve diseases and disorders.
I’ve started a website to raise awareness for PN and CMT
No child should witness a parent in extreme pain - and feel totally helpless.
Thanks for you...Read the full article

[bourdelais]

What is your web site?

[BonnieLou]

Hello, My name is Bonnie. I am 43 and was just diagnoised with CMT. I am a very determined person. I have wondered my whole life if I had a medical condition. I did'nt know for sure that all the symtoms I had were related but I always wondered. I went to a foot doctor at age 16. At that time I played basketball and ran track, although I was not great at either. I was frustrated at not showing much improvement after the years I spent practicing and play my sports. I was decided that i was just not athletic. I now teach painting and I knit and crochet. I have always had problems with my feet but now my hands are beginning to show changes. That led me to a orthopedic doctor. Just by chance I mentioned my feet. He sent me to a neuroligist to rule out CMT. I had never heard of such a thing but as soon as I met the neurogist it was as if he knew me. Now I am just trying to find out what this is all about. I am not sure where this will lead me in the future and I am very apprehensive about how fast this will progress. I refuse to stop doing the things that are difficult for me. I have great faith that with the Lords help I will handle whatever comes to me. Thank you to everyone for their stories it helps me understand myself.